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Heart failure: A practical guide for congenital heart disease patients
It doesn't mean you're dying, but it's becoming more common. Here's what you need to know.
Apr 14
•
Leigh Kamping-Carder
11
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Heart failure: A practical guide for congenital heart disease patients
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14
No amount of planning will save you
Or, how an earthquake made me think about my heart
Apr 5
•
Leigh Kamping-Carder
10
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No amount of planning will save you
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14
Heart surgery was a portal to a new life
In a guest essay, Boots Knighton delves into what has changed since coming out of the operating room
Mar 3
•
Leigh Kamping-Carder
and
Suzanne Boots Knighton
8
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Heart surgery was a portal to a new life
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"Your scars are familiar"
A writer whose late son was born with a heart defect finds strength—not pain—in meeting adults with the same diagnosis
Jan 21
•
Leigh Kamping-Carder
and
James G. Robinson
5
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"Your scars are familiar"
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15
What I learned from my transition to adult cardiac care
Maria Lata's move from the pediatric cardiology team she'd known for a decade was "a pivotal part" of her life.
Dec 10, 2023
•
Leigh Kamping-Carder
and
Maria Lata
6
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What I learned from my transition to adult cardiac care
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10
The people who get it, get it
A li'l pep talk for the niche Substack writers out there
Dec 3, 2023
•
Leigh Kamping-Carder
23
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The people who get it, get it
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27
A guide to more effective, less stressful cardiology visits
Advocate for yourself, manage your emotions and get the information you need
Sep 17, 2023
•
Leigh Kamping-Carder
10
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A guide to more effective, less stressful cardiology visits
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6
The freedom of not wanting kids
Plus, the dubious assumption that all women with complex hearts want to get pregnant.
Aug 6, 2023
•
Leigh Kamping-Carder
10
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The freedom of not wanting kids
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26
CHD care is full of unknowns. They want answers.
The Congenital Heart Initiative is gathering patient data in an effort to improve treatment.
Jun 25, 2023
•
Leigh Kamping-Carder
5
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CHD care is full of unknowns. They want answers.
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7
Don't call me a warrior
Describing someone with an illness as a "warrior" or "hero" makes me cringe. Why is that?
Apr 2, 2023
•
Leigh Kamping-Carder
11
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Don't call me a warrior
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13
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