It’s interesting hearing about other patient experiences, especially on a topic I haven’t really had to deal with yet. I had my one and so far only OHS for VSD & double-chambered right ventricle at 16 months, and my pediatric program hospital (CT Children’s) ended up forming an adult congenital program too, so I got to stay not only with the hospital but my doctor as well - twenty plus years of care builds a lot of trust! I know at some point I’ll have to change programs be it due to a move or otherwise, but hopefully not for a few more years yet.
Thank you Maria for sharing this story. You’ve been thru helAnd back.
But that’s the key: your back!
To answer Leighs question : I feel my adult care is stupendous !! I had Two open hearts at 6,7. The first didn’t , The second one worked.
Because cardiac care is now so advanced in every aspect - tools techniques procedures plans staffing pharmacy and so on- I don’t worry at all about whether I will need a third. If I do, then I do.
For me it was changing from Children's Hospital in Cincinatti to the Cleveland Clinic in Cleveland during college. I was assigned a congenital value disease cardiologist who was about 10 years older than I. He was so engaging and interested in helping me navigate this new world that for me made it easy. He now has seen me through 2 additional open heart surgeries and the team at Cleveland Clinic is outstanding, I've been in this care team going on 30.years. It's daunting to consider a relocation, I don't plan to retire in NE Ohio, but will need to carefully consider options. I sort of feel "locked" in NE Ohio for my medical care...perhaps a small price to pay, but not my ideal life destination.
That's great to hear. I had a similar geographic transition after I moved to New York. I do feel like it factors into my thinking about whether I'll continue to live here.
That's so interesting about dental care. I would not have anticipated that would have been a struggle! I had the opposite experience, going from Canadian healthcare to the American system, and it has been such an adjustment. Whew.
It’s interesting hearing about other patient experiences, especially on a topic I haven’t really had to deal with yet. I had my one and so far only OHS for VSD & double-chambered right ventricle at 16 months, and my pediatric program hospital (CT Children’s) ended up forming an adult congenital program too, so I got to stay not only with the hospital but my doctor as well - twenty plus years of care builds a lot of trust! I know at some point I’ll have to change programs be it due to a move or otherwise, but hopefully not for a few more years yet.
Wow, that's a great situation. Thanks for sharing!
Thank you Maria for sharing this story. You’ve been thru helAnd back.
But that’s the key: your back!
To answer Leighs question : I feel my adult care is stupendous !! I had Two open hearts at 6,7. The first didn’t , The second one worked.
Because cardiac care is now so advanced in every aspect - tools techniques procedures plans staffing pharmacy and so on- I don’t worry at all about whether I will need a third. If I do, then I do.
But fingers crossed !
Woody Edelman
Fingers crossed, indeed! Thanks for sharing, Woody.
For me it was changing from Children's Hospital in Cincinatti to the Cleveland Clinic in Cleveland during college. I was assigned a congenital value disease cardiologist who was about 10 years older than I. He was so engaging and interested in helping me navigate this new world that for me made it easy. He now has seen me through 2 additional open heart surgeries and the team at Cleveland Clinic is outstanding, I've been in this care team going on 30.years. It's daunting to consider a relocation, I don't plan to retire in NE Ohio, but will need to carefully consider options. I sort of feel "locked" in NE Ohio for my medical care...perhaps a small price to pay, but not my ideal life destination.
That's great to hear. I had a similar geographic transition after I moved to New York. I do feel like it factors into my thinking about whether I'll continue to live here.
I share these relocation concerns!! Daunting.
That's so interesting about dental care. I would not have anticipated that would have been a struggle! I had the opposite experience, going from Canadian healthcare to the American system, and it has been such an adjustment. Whew.